or have they have been diagnosed as such in order to get funding for sometimes very real problems?
I am asking the question because apparently around $9bn of the $50bn or so spent NDIS programs went to supporting those with "autism". The number of those diagnosed with autism has apparently almost doubled in the last five years. The article in the paper is suggesting we are "getting better at diagnosing the problem, particularly in women and girls". Is that correct?
I watched a short video recently. It was taken by the mother of an autistic man. He is around twenty now and nobody could doubt he is very severely disabled. In a photograph it is possible you would not see anything wrong but the video tells a different story. He can do nothing for himself. He still puts everything in his mouth. He cannot go to the bathroom alone. He cannot dress himself. He has no speech. His "play" level is less than that of a two year old. At the same time he is a grown man with a beard. He gets violent. It is sometimes without apparent cause but often because he is frustrated. Living with him is a constant balancing act. It is exhausting.
The NDIS is, quite rightly, intended to help people like him and his family. They need more help than they are getting but there is limited funding. When his mother can no longer cope he will probably end up in some form of "care", possibly drugged in order to keep his behaviour from being a danger to others.
What the NDIS is not there for is to provide assistance to children with mild behaviour issues or learning difficulties. All too often though this is the way it is being used. Children are being diagnosed as "autistic" in order to get help that should be available elsewhere. "Autistic" is seen as an acceptable label. It is more acceptable than "behaviour issues" or "learning issues".
I have no doubt at all that some of those "issues" are due to changes in the sort of world we now live in. They are also due to changes in the way we expect children to function in classrooms which are also very different.
Not so long ago I had an unexpected conversation with someone who had worked under the Senior Cat's leadership. When the Senior Cat went to take over the headship of the school there was one of the then popular "classrooms" with four teachers in a large space. It was considered to be a good learning environment where children would learn to socialise and work together in teams. There were units like this all over the metropolitan area. The unit was the responsibility of the deputy headmaster.
It was not working well. The teachers had volunteered to be there but they were struggling. Even the most able students were not coping well. Quite simply it was not a good learning environment. It was too noisy. There were too many distractions. The idea that children could be taught in large groups and then be divided into smaller groups to do the activities which followed was not working. Children were not listening. They were distracted by other things. The supposed "team work" and "socialisation" was not being achieved in the intended way. There were more issues in the playground.
It was Education Department policy to have these units. There was the intention to eventually make all schools work to this model. Like many other educational experiments it was a policy which was eventually discarded at least in part. There are still times where classes come together but it is not an all day and everyday policy. It is interesting that teachers now tell me some children do not cope well when they are in a larger group or when there is a big change in routine. They inevitably include the children who have been labelled as being "on the spectrum".
There must be children who are falling behind early in their school lives because of the learning environment in which they find themselves at school and also at home. Being "distracted" or "fidgety" or "restless" or something else seen as unacceptable surely does not mean you are on that catch all autism spectrum. It might be that the learning environment in which you find yourself is not one which allows you to learn as easily, if at all. Would it help if we started looking at the problems from a different direction?
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